Who is Regan you ask? Regan is my niece, she was born with Beckwith-Wiedemann syndrome.
My goal is to make people aware of this syndrome. No one person diagnosed with this disease has the same symptoms but there are many common traits. Regan was born pre-mature at 27 weeks with a larger birth weight then expected. She had an enlarged tongue and was born with her intestines herniated. She's had numerous surgeries and is the toughest little girl you'd ever meet.
I'm asking for help from my friends & family with any input on routes, support crew volunteers, possible places to stay along the way and other details. ANY IDEAS, questions, comments, please contact me at cowboy6868@yahoo.com, facebook me or call me @ 858-344-1399.
I'm working on a few fundraising ideas, stay tuned or let me know if you have a great idea to throw my way.
All suggestions would be greatly appreciated.
Thank you,
Brent
